Stiliyan Petrov - and what I'm going to do about it
- Thread starter Big Jim
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Willy Dangle
New member
- Aug 31, 2011
- 3,551
Not really, should have done it years ago but following little Williams recovery kicked me up the arse.
- Thread starter
- #225
Thanks Gwm. Training going ok. managed 120 miles last week (+ an hour of 5 aside and a swim). 53 miles in one hit two sundays ago.
Taking it easy this week as knee giving me a small niggly bit of grief after Shoreham-Newhaven last Sat. think we took the hills a bit too fast.
My only issue is that I'm amazed with all this exercise, that I'm not losing more weight. But maybe that'll come in time.
Will try a 50 something miler next week.
Had a tip about ice baths after exercise, so gonna try that during the denmark ride.
- Thread starter
- #226
Just a quick update on William.
He's now just over 12 weeks post transplant, and seems to be getting better as days progress. More energy, the rash is improving, more like a 3 year old really. So all is good.
Here's a picture from a moment ago.
The bike training is going ok. Have found that the Maxxis Detonator tyres that came with my Giant Seek 1 are puncture prone. So am just waiting for some new puncture proof tyres to arrive from amazon. I suppose training isn't just about fitness, it's also about logistics/ getting ready and solving any problems in advance. We've booked flights and the ride will start in Copenhagen on 13th September. Am hoping to upload photos on Twitter throughout.
thanks again for all the donations. Am nearly at £8K now, which is 8 x what I originally wished for.
He's now just over 12 weeks post transplant, and seems to be getting better as days progress. More energy, the rash is improving, more like a 3 year old really. So all is good.
Here's a picture from a moment ago.
The bike training is going ok. Have found that the Maxxis Detonator tyres that came with my Giant Seek 1 are puncture prone. So am just waiting for some new puncture proof tyres to arrive from amazon. I suppose training isn't just about fitness, it's also about logistics/ getting ready and solving any problems in advance. We've booked flights and the ride will start in Copenhagen on 13th September. Am hoping to upload photos on Twitter throughout.
thanks again for all the donations. Am nearly at £8K now, which is 8 x what I originally wished for.
imissworthing2
New member
A massive well done to you both, he looks great.
- Thread starter
- #228
A massive well done to you both, he looks great.
Thanks. He's definately improving all the time
Just gotta hope it stays that way
- Thread starter
- #230
All good thanks
Been away taking my daughter to France, then been busy planning the route using garmin base camp. There's not enough hours in the day. Williams still ok, though had a blood clot in his neck where his Hickman line was inserted. The Hickman line has since been removed and a port inserted which is a lot less intrusive I think as it doesn't have big dangly lines coming from his chest. Anyway the blood clot was treated with daily injections and has since reduced in size a great deal. He has also had a stomach sickness virus, which he seems to have shaken off after a week. He's obviously lost some weight, but otherwise he's pretty much back to normal. His graft verses host diease (his itchy rash) is also improving and his steroids are gradually being reduced. Hopefully soon he'll be off the steroids completely and will be able to return to pre-school.
Here's a picture from a moment ago:
The fundraising is going well and currently sits at £8,319.00. Training has been ok, though I got really fed up with punctures on my Maxxis detonators, so I dumped them for some Schwalbe Marathon Plus which are superb. We're starting the ride on 13th September and I'm hoping my brothers phone will be able to tweet our progress. my twitter is [MENTION=2150]james[/MENTION]lyne1
I just hope my dodgy left holds up!!
thanks for the continuing support
Willy Dangle
New member
- Aug 31, 2011
- 3,551
Top stuff....when will he be well enough to visit our temple of wizardary (Amex), if that how you spell wizadary?.
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- #232
Hopefully early next year. I'd imagine once he's returned to school, he can begin to return to public places.
I think it all depends on when they can ween him off the Steroids (which are currently suppressing his immune system).
up early this morning as woken by him being sick and squits, thought he'd shaken the thing off, but it's hanging around. Been ill for well over a week now with it. Poor little thing, he's really had a hard couple of years.
Willy Dangle
New member
- Aug 31, 2011
- 3,551
Poor fella. It will make him a stronger adult that's for sure.
- Thread starter
- #234
Hopefully. He's improved over the last 12 hours (no squits or sick). So hopefully he has actually shaken it off this time.
SK1NT
Well-known member
Really fantastic news... Made my day
Falkor
Banned
- Jun 3, 2011
- 5,673
Stan winning the battle
STILIYAN PETROV says he is “heading in the right direction” now his acute leukaemia is in remission.
The Aston Villa captain was diagnosed with the illness in March but was told last month that he is on the road to recovery.
Petrov, 33, said: “I’m fine but it’s been hard and tough. Thankfully, everything is going in the right direction.”
The Bulgarian expressed his gratitude to club masseurs Alex Butler and Andy Smith for their support.
They completed a 400-mile ‘Pedal for Petrov’ charity cycle ride at Villa Park yesterday.
STILIYAN PETROV says he is “heading in the right direction” now his acute leukaemia is in remission.
The Aston Villa captain was diagnosed with the illness in March but was told last month that he is on the road to recovery.
Petrov, 33, said: “I’m fine but it’s been hard and tough. Thankfully, everything is going in the right direction.”
The Bulgarian expressed his gratitude to club masseurs Alex Butler and Andy Smith for their support.
They completed a 400-mile ‘Pedal for Petrov’ charity cycle ride at Villa Park yesterday.
- Thread starter
- #237
THe problem is that remission doesn't mean cured, as we found out with William. The vast majority of children over the past years with AML at the Marsden have relapsed.
With Aml it has a nasty habit of doing just that.
I think 80% get remission, but for average disease only 65% are cured (5 years survival) (and that percentage includes relapsing and having a bone marrow transplant).
I've heard people say that their child is in remission and have beaten Cancer, but they are very much misguided. Remission just means it's non detected and isn't running riot in your body, but cells are certainly still about the body and can come back within weeks.
I know Alex Butler. I started this thread about a month before they announced what they were doing. This is what he kindly said about me during his ride: http://leukaemialymphomaresearch.org.uk/news-item/given-im-bit-large-size
Should also mention that relapsed Leukaemia is generally harder to treat and get the patient back into remission. Relapsing within a year is bad and only 50% regain remission I believe.
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- Thread starter
- #238
I'm flying off to Copenhagen tomorrow, and starting the ride on Thursday. Just wanted to thank all the people who have supported me and donated, etc. I'll post one last time once it's completed.
William's ok ish still. His NG tube came out of his mouth when he was sick a few days ago, and we're trying things without.
Here's a picture:
William's ok ish still. His NG tube came out of his mouth when he was sick a few days ago, and we're trying things without.
Here's a picture:
Falkor
Banned
- Jun 3, 2011
- 5,673
I'm flying off to Copenhagen tomorrow, and starting the ride on Thursday. Just wanted to thank all the people who have supported me and donated, etc. I'll post one last time once it's completed.
William's ok ish still. His NG tube came out of his mouth when he was sick a few days ago, and we're trying things without.
Here's a picture:
Mate he looks amazing, fantastic stuff
- Thread starter
- #240
Yeah this picture is a good one, though I really need to clean my mobile phones camera. His skin is quite nasty and dry.
Actually the nasty skin is a good sign as it shows the donor cells are attacking his body (and hopefully any residual cancer).
Fingers crossed. I really don't want him to relapse (30% chance) and have to bring him home to die as nothing else they can do. That's my worst possible nightmare.