IndependentWSU
New member
- May 24, 2011
- 350
Hi,
My name is Russ Doherty and this is one of my beautiful daughters, her name is Ellen and she is a 7 years old.
About 3 years ago she started dropping things for no apparent reason, these events worsened over a matter of weeks with sudden erratic movements of her arms. This continued with absences and ‘jumps’ (as she called them) to heighten to approximately 10 occurrences a day. Our fears were confirmed as she was diagnosed with Epilepsy. Medication started, but nothing was touching the now violent jumps, which of course were seizures. These seizures were now forcing a sudden forward movement of arms and upper body, the movement would always be in a forward motion. These seizures now result in numerous facial contacts with objects, dinner tables and sinks causing the most damage to her pretty face. Frequent visits to A&E are now an accepted part of her routine, not only for blood tests, MRI, CT scans but the injuries Epilepsy causes. The photo here was a recent visit to Hospital,the bruising to her face was a result of contact with the sink as she was cleaning her teeth. This was compounded a few days later when a seizure sent her down the entire flight of stairs at home.
Our Ellen is a superstar she doesn’t complain of the twice daily concoction of medication we administer, she doesn’t complain of the tests and bloods she regularly endures or the fact she misses days and days from school and cannot participate in School trips or cycling or climbing etc etc the things she should do as a 7 year old but can’t. Our Ellen gets on with her complicated little life as best as she can. Through all this she always smiles her cheeky smile, her sense of humour is amazing, she is kind and so considerate, my beautiful little princess will make the most of everything.
She currently has up to 20 seizures a day, her Epilepsy helmet helps prevent some physical injury but no medication is yet to help her significantly.
Ellen was diagnosed with Epilepsy at the age of 4. A rare form of Epilepsy called Lennox-Gastaut Syndrome is likely to be the cause of her seizures. Unfortunately Lennox-Gastaut is a lifelong condition with no known cure. Life expectancy is normally reduced with the amount of seizures and all sufferers will experience Learning difficulties throughout their life.
Ellen asked me to help her and other children. I am riding the Surrey Prudential 100 on August 10th one week after racing at the Wales Half Ironman Triathlon.
The Welsh Half Ironman consists of 1.2 mile Swim, 56 mile Bike and 13.1 mile Run. A week later it will be 100 mile cycle around London and Surrey. I am doing this for my daughter Ellen and trying to raise money for Epilepsy Action so other children worse off than Ellen can have, hopefully a better way of life.
If you could raise or donate a small amount to Epilepsy Action via Ellen’s Just Giving page we would be very appreciative.
http://www.justgiving.com/owner-email/pleasesponsor/Russ-Doherty1
Thank You
My name is Russ Doherty and this is one of my beautiful daughters, her name is Ellen and she is a 7 years old.
About 3 years ago she started dropping things for no apparent reason, these events worsened over a matter of weeks with sudden erratic movements of her arms. This continued with absences and ‘jumps’ (as she called them) to heighten to approximately 10 occurrences a day. Our fears were confirmed as she was diagnosed with Epilepsy. Medication started, but nothing was touching the now violent jumps, which of course were seizures. These seizures were now forcing a sudden forward movement of arms and upper body, the movement would always be in a forward motion. These seizures now result in numerous facial contacts with objects, dinner tables and sinks causing the most damage to her pretty face. Frequent visits to A&E are now an accepted part of her routine, not only for blood tests, MRI, CT scans but the injuries Epilepsy causes. The photo here was a recent visit to Hospital,the bruising to her face was a result of contact with the sink as she was cleaning her teeth. This was compounded a few days later when a seizure sent her down the entire flight of stairs at home.
Our Ellen is a superstar she doesn’t complain of the twice daily concoction of medication we administer, she doesn’t complain of the tests and bloods she regularly endures or the fact she misses days and days from school and cannot participate in School trips or cycling or climbing etc etc the things she should do as a 7 year old but can’t. Our Ellen gets on with her complicated little life as best as she can. Through all this she always smiles her cheeky smile, her sense of humour is amazing, she is kind and so considerate, my beautiful little princess will make the most of everything.
She currently has up to 20 seizures a day, her Epilepsy helmet helps prevent some physical injury but no medication is yet to help her significantly.
Ellen was diagnosed with Epilepsy at the age of 4. A rare form of Epilepsy called Lennox-Gastaut Syndrome is likely to be the cause of her seizures. Unfortunately Lennox-Gastaut is a lifelong condition with no known cure. Life expectancy is normally reduced with the amount of seizures and all sufferers will experience Learning difficulties throughout their life.
Ellen asked me to help her and other children. I am riding the Surrey Prudential 100 on August 10th one week after racing at the Wales Half Ironman Triathlon.
The Welsh Half Ironman consists of 1.2 mile Swim, 56 mile Bike and 13.1 mile Run. A week later it will be 100 mile cycle around London and Surrey. I am doing this for my daughter Ellen and trying to raise money for Epilepsy Action so other children worse off than Ellen can have, hopefully a better way of life.
If you could raise or donate a small amount to Epilepsy Action via Ellen’s Just Giving page we would be very appreciative.
http://www.justgiving.com/owner-email/pleasesponsor/Russ-Doherty1
Thank You
