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Any coeliacs on NSC?



Curious Orange

Punxsatawney Phil
Jul 5, 2003
10,226
On NSC for over two decades...
This is what Heinz say. I mean WTF?

According to the new legislation, a 'Gluten Free' claim will be permitted on foods that contain less than 20 mg/kg of gluten. Although we do not claim in Europe that Heinz Tomato Ketchup is 'Gluten Free' it does not contain any gluten containing ingredients.

It probably means that the production line is either also used to bottle other sauces that do contain gluten, or the line next door does something involving gluten.
 




chimneys

Well-known member
Jun 11, 2007
3,609
........ordinary malt vinegar is a no, wine vinegar etc is fine.

I'm a Coeliac and beg to differ. This from Coeliac UK:

"Can I eat barley malt vinegar?
Yes. Barley malt vinegar is made from barley and is found in pickles, chutneys and some sauces. If it is used in a food product the manufacturer must list the word ‘barley’ in the ingredients list in line with European Union wide allergen labelling law.
Barley malt vinegar is made using a fermentation process. This means that the amount of barley, and therefore gluten, in the end product is extremely small and is well below a level which is safe for people with coeliac disease. In addition, barley malt vinegar is usually only eaten in small amounts, for example, drained pickled vegetables, sauces with a meal or on chips.
Balsamic, cider, sherry, spirit, white wine and red wine vinegar are not made from barley and can also be included in your gluten-free diet."

My dietitian also told me this when first diagnosed and have carried on with malt vinegar ever since. Same goes for malt whiskey.
 


ropey9

Active member
Feb 25, 2009
183
My children are coeliacs, the transition is pretty easy, like anything it seems daunting as you know little about what you can and can't do. As mentioned earlier the coeliac society app is great if you are unsure then scan the barcode and it will tell you.

But in the main we've had to make little change to what we used to eat prior to C-day. Small changes like making Sunday dinner and using cornflour instead of flour to thicken the gravy, bread is the killer but my kids like some of it -mainly the more expensive rolls :).

We buy little from the free from sections in supermarkets as you can get what you need from the main aisles - simple things like Kellogg's Crunchy Nut have gluten but Tesco own brand are fine whereas you'll find the Nestle Free From version for £2 more.

My wife reckons Asda are the best for having not specifically marked as gluten free products around the shop - so things like the better quality sausages at Tesco (finest) and Asda are fine. If you buy ready meals you are generally screwed but the upside is you will eat better. In the main I don't think our food bill has gone up massively - on average probably an extra £10 a week for the GF bread / pasta (heinz is the best pasta if you can find it).

Eating out is a pain although EU legislation means all restaurants and takeaways should clearly indicate what each dish contains. As already mentioned cross contamination is a killer both at home and eating out. The toaster is easily resolved as you can get bread sleeves that the bread can go in before toasting avoiding the need for 2 toasters. You'll find it easier to have separate butter/spread clearly marked as the one used for the Coeliacs if the whole house hasn't gone gluten free.

When eating out it can become painful trying to get to the bottom of what they can have - simple things like chips are gluten free but when fried with battered fish are cross contaminated so you just get used to asking at restaurants and takeaways. Agree with the earlier poster Indian food in the main is gluten free apart from the breads.

In generally I find that most places when eating out are incredibly helpful and happy to go off menu to assist if needed.

Post is all a bit rambling as I thought of things. Once you get up to speed on things it quickly becomes easy to deal with.

ATB
 


ropey9

Active member
Feb 25, 2009
183
I'm a Coeliac and beg to differ. This from Coeliac UK:

"Can I eat barley malt vinegar?
Yes. Barley malt vinegar is made from barley and is found in pickles, chutneys and some sauces. If it is used in a food product the manufacturer must list the word ‘barley’ in the ingredients list in line with European Union wide allergen labelling law.
Barley malt vinegar is made using a fermentation process. This means that the amount of barley, and therefore gluten, in the end product is extremely small and is well below a level which is safe for people with coeliac disease. In addition, barley malt vinegar is usually only eaten in small amounts, for example, drained pickled vegetables, sauces with a meal or on chips.
Balsamic, cider, sherry, spirit, white wine and red wine vinegar are not made from barley and can also be included in your gluten-free diet."

My dietitian also told me this when first diagnosed and have carried on with malt vinegar ever since. Same goes for malt whiskey.

I think it depends on what age you are - for children we were told to avoid barley for at least a year and then to allow a small amount into the diet once the consultant checks on progress.
 


AmexRuislip

Retired Spy 🕵️‍♂️
Feb 2, 2014
34,758
Ruislip
Eating out is a pain although EU legislation means all restaurants and takeaways should clearly indicate what each dish contains. As already mentioned cross contamination is a killer both at home and eating out. The toaster is easily resolved as you can get bread sleeves that the bread can go in before toasting avoiding the need for 2 toasters. You'll find it easier to have separate butter/spread clearly marked as the one used for the Coeliacs if the whole house hasn't gone gluten free.

As you have rightly said, most restaurants are very good at letting you know of included allergens.
Basically a freshly made meal from scratch is okay, as it should only contain fresh ingredients and no added crap.
It's just a lot of the convenience outlets, restaurants etc all have pre--cooked food, supplied to them by the likes of Brakes, and may have a lot of the allergens included.
Still have to be careful though.
 




chimneys

Well-known member
Jun 11, 2007
3,609
I think it depends on what age you are - for children we were told to avoid barley for at least a year and then to allow a small amount into the diet once the consultant checks on progress.

You might be right. I wasn't diagnosed till 40 and am not hyper gluten sensitive.

BTW for any adults who are Coeliacs, most, if not all, Westerham bottled real ales are marked with crossed grain/"suitable for Coeliacs". Can get in Waitrose throughout the south east, and Sainsbury does their Freedom Ale. However its in their main beer section and not the Free From areas. Makes a massive difference to otherwise having to stick to cider/wine/spirits or paying a fortune for specialist GF beer.

That said Damm by Estrella Daura is absolutely stunning GF lager, if a little alcoholic at 5.5%. Can get in Sainsbury or Tesco Free From sections.

I also drink Corona as very low gluten as confirmed in Swedish tests, albeit not officially "suitable for Coeliacs."
 


Del Boy

New member
Oct 1, 2004
7,429
I visited The Creperie on Ship Street today, very nice and they're the only 100% GF restaurant in Brighton. Also have small batch and GF ice cream cones!
 


Dec 9, 2015
22
coeliac advice

My 7 year old daughter had a positive test result for coeliac disease this week. Anyone have any tips/good sources of help and advice that they can share? My wife is away this weekend and this is making looking after my 3 littl'uns a lot trickier. I haven't really got a clue but I'm struggling through. GF sausages and homemade chips for tea. Is heinz ketchup ok?

All advice/sources of info will be much appreciated and very useful in the long term.

Thanks.

Hi your best bet is to join coeliac uk, you pay a £20 donation and you will be sent a thick book with all the gluten free foods listed, including
all the main supermarkets own brands. also go on line to JUVELA and GLUTAFIN register your daughter and they will send you a load of
freebies. Next go to your doctor as you can get her all the staple foods on prescription ie loaves of bread, pasta etc. By the way if you don't want to do
homemade chips McCain oven chips in the orange packs are GF just look on back of pack. Hope this helps
 




Del Boy

New member
Oct 1, 2004
7,429
BeFries opened on West Street on Saturday... Twice fried chips (gluten free with no cross contamination as they only fry chips), some sauces contain gluten so check first!
 


joker

BHA Blues Away
Aug 2, 2010
571
Eastbourne
I'm a Coeliac and beg to differ. This from Coeliac UK:

"Can I eat barley malt vinegar?
Yes. Barley malt vinegar is made from barley and is found in pickles, chutneys and some sauces. If it is used in a food product the manufacturer must list the word ‘barley’ in the ingredients list in line with European Union wide allergen labelling law.
Barley malt vinegar is made using a fermentation process. This means that the amount of barley, and therefore gluten, in the end product is extremely small and is well below a level which is safe for people with coeliac disease. In addition, barley malt vinegar is usually only eaten in small amounts, for example, drained pickled vegetables, sauces with a meal or on chips.
Balsamic, cider, sherry, spirit, white wine and red wine vinegar are not made from barley and can also be included in your gluten-free diet."

My dietitian also told me this when first diagnosed and have carried on with malt vinegar ever since. Same goes for malt whiskey.

I can only say what affects my wife and anything containing malt does.
My apologies if I have mislead anyone
 


Deano's Right Foot

Well-known member
Jul 5, 2003
3,915
Barcombe
Just had a positive blood test for Coeliac Disease. I have to stay on the Gluten until I have further tests (endoscopy/biopsy) and the wait is around 35 weeks right now :ohmy: They tested because I was anaemic which was tested for as I was ridiculously fatigued and have constant swollen neck glands. This is a great thread for resources - thanks all.

Once I get the further tests done though it's GF all the way. Any new amazing products that I should look out for when I go GF? I don't eat meat but do eat fish/some seafood.

Cheers!
 




Bodian

Well-known member
May 3, 2012
14,250
Cumbria
Just had a positive blood test for Coeliac Disease. I have to stay on the Gluten until I have further tests (endoscopy/biopsy) and the wait is around 35 weeks right now :ohmy: They tested because I was anaemic which was tested for as I was ridiculously fatigued and have constant swollen neck glands. This is a great thread for resources - thanks all.

Once I get the further tests done though it's GF all the way. Any new amazing products that I should look out for when I go GF? I don't eat meat but do eat fish/some seafood.

Cheers!

My wife had a long wait like you. However, she started cutting out gluten as early as possible - no need to 'stay on the Gluten' till you have further tests, as gluten itself doesn't bring many benefits to us (that is - you won't suffer if you cut it out). And the earlier you start reducing it the better, as you get in the habit of checking ingredients and so on - it pops up in the most unlikeliest of products.

Good luck.
 


Deano's Right Foot

Well-known member
Jul 5, 2003
3,915
Barcombe
My wife had a long wait like you. However, she started cutting out gluten as early as possible - no need to 'stay on the Gluten' till you have further tests, as gluten itself doesn't bring many benefits to us (that is - you won't suffer if you cut it out). And the earlier you start reducing it the better, as you get in the habit of checking ingredients and so on - it pops up in the most unlikeliest of products.

Good luck.

Thanks! Unfortunately the doc says that I definitely need to stay on a normal diet until the tests so they know how badly damaged my small intestine is when they do the tests and that they will start to improve when I give up gluten. All fine if it's 3 weeks, but galling and worrying if it's 35 weeks, but I've probably been coeliac for many years so I'm not sure what difference it would make but it would be good to start on the road to feeling better ASAP.
 


Greg Bobkin

Silver Seagull
May 22, 2012
16,036
Just had a positive blood test for Coeliac Disease. I have to stay on the Gluten until I have further tests (endoscopy/biopsy) and the wait is around 35 weeks right now :ohmy: They tested because I was anaemic which was tested for as I was ridiculously fatigued and have constant swollen neck glands. This is a great thread for resources - thanks all.

Once I get the further tests done though it's GF all the way. Any new amazing products that I should look out for when I go GF? I don't eat meat but do eat fish/some seafood.

Cheers!

Nothing of note, however a lot of GF products are on a par – if not better – than the ones with gluten. A good mate of mine is coeliac and we once got some GF chocolate biscuits/cakes for him. They were so nice he was almost convinced they had gluten in them (he had to check the packaging himself). On a similar note, Mrs B makes a number of sweet products including brownies and the GF ones are better than the 'normal' ones.

Basically, it's a lot easier, these days, for coeliacs – and the products that they can eat are so far improved from a few years ago. Bread's still a bit ropey though, I think.

Good luck!
 






Dec 9, 2015
22
Hi join coeliac UK it costs 20 quid and they send you a book with all the major supermarkets in it and lists their own brand GF products so no need to always buy from the free from aisle. When you join it allows you to download the app which has a scanner on it so if you want to check an item you just scan the barcode and it will tell you if it's suitable and yes Heinz ketchup is GF. Good luck
 




Dec 9, 2015
22
Heinz tom sauce is listed as GF on coeliac UK. I've used it and if I make a mistake in throwing up all over the place so I'm really carefull bordering on paranoid😄
 






D

Deleted member 2719

Guest
My Brother in law is a Coeliac... he bought himself a bread maker.... best thing he ever did apparently. Lovely smell in the house and get too experiment with all sorts of good stuff.

Has he any decent GF bread recipes you can share? My father is coeliac and I do all the shopping and he hates every single different loaf I have ever bought him!

We have a bread maker, so I would like to bake him some bread, as he is living off of GF Nairn oatcakes at present!
 


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