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[Misc] Patients Know Best



FindonFan

Well-known member
Jul 15, 2014
2,684
Our local NHS have invited me to register with them so that I can access my medical informational to help me manage my health.
Not heard of such a scheme before, has anybody else on NSC been approached?
 




Acker79

Well-known member
NSC Patron
Nov 15, 2008
31,921
Brighton
Is this anything like NHS digital? Over the lockdown period I signed up to NHS digital to link my medical record to the NHS app, which lets you manage your medical record.

 


One Teddy Maybank

Well-known member
NSC Patron
Aug 4, 2006
22,997
Worthing
I use it.

There are pro’s and cons, depending on how you feel as an individual.

Positives:
You can see your results quickly, including a range with confidence intervals etc.
You can see when your next appointments are

Negative:
Without medical interpretation, when you are outside a range for a set of blood results, it could be worrying.

It can also result in the ‘worried we’ll’ contacting hard pressed GP practices unnecessarily.

I would go for it, but not delve too deeply in th.e results.
 


AmexRuislip

Retired Spy 🕵️‍♂️
Feb 2, 2014
34,773
Ruislip
It's good for getting information on your health and appointments.
It's linked to your NHS app.
You get emails or texts on these updates.

Downside is that it shows results on certain issues, before you go to hospital to get them.
Even when phoning the hospital, the staff refrain from telling you your results, by telling you to wait for appt.
But they're on Patients Know Best :facepalm:
 


Sirnormangall

Well-known member
Sep 21, 2017
3,182
Yes I registered but I’m not sure it will be much use currently as ( touch wood) I’m reasonably healthy. My practice also asked me to register so that I can book appointments on line. I completed their paper form, took it to the surgery with the required ID. They sent me an email with log in details. I logged in and it said my surgery doesn’t offer the ability to book on line appointments! I suggested to my surgery that they ought to stop promoting on line appointments - they thought that’s a good idea.

At that point I was on the verge of having a John Cleese moment, but then I reflected on all the good stuff they do. Now that I’ve reached a certain age they contact me regularly about all sorts of preventative stuff: blood pressure, various jabs and other tests. We’re lucky to have a proactive practice - more fortunate than many others I suspect.
 








Si Gull

Way Down South
Mar 18, 2008
4,689
On top of the world
We’re registered online with NHS Patient Access. Does not need to be via an app, a full desktop version works fine.

Allows re-ordering prescriptions and access to medical test results.

It’s been going for years, works well.
Patient Access works well for us, too. Good to be in control of your prescription orders and being able to see test results and diagnoses is great, if that's your thing.
 




jcdenton08

Offended Liver Sausage
NSC Patron
Oct 17, 2008
14,542
Yes I registered but I’m not sure it will be much use currently as ( touch wood) I’m reasonably healthy. My practice also asked me to register so that I can book appointments on line. I completed their paper form, took it to the surgery with the required ID. They sent me an email with log in details. I logged in and it said my surgery doesn’t offer the ability to book on line appointments! I suggested to my surgery that they ought to stop promoting on line appointments - they thought that’s a good idea.

At that point I was on the verge of having a John Cleese moment, but then I reflected on all the good stuff they do. Now that I’ve reached a certain age they contact me regularly about all sorts of preventative stuff: blood pressure, various jabs and other tests. We’re lucky to have a proactive practice - more fortunate than many others I suspect.
Seaford?
 


trueblue

Well-known member
Jul 5, 2003
10,955
Hove
I use it.

There are pro’s and cons, depending on how you feel as an individual.

Positives:
You can see your results quickly, including a range with confidence intervals etc.
You can see when your next appointments are

Negative:
Without medical interpretation, when you are outside a range for a set of blood results, it could be worrying.

It can also result in the ‘worried we’ll’ contacting hard pressed GP practices unnecessarily.

I would go for it, but not delve too deeply in th.e results.
On this score, I think the GP can block the release of test results until they have reviewed them and some may even have a blanket time limit in place to protect patients from worrying unduly. This appeared to happen on mine recently.
 


maltaseagull

Well-known member
Feb 25, 2009
13,361
Zabbar- Malta
The most ridiculous thing I have seen is adverts on TV to contact your GP if you feel ill.
It takes my sister in law in the UK ages just to get to speak to a doctor let alone actually meet one.
 






One Teddy Maybank

Well-known member
NSC Patron
Aug 4, 2006
22,997
Worthing
On this score, I think the GP can block the release of test results until they have reviewed them and some may even have a blanket time limit in place to protect patients from worrying unduly. This appeared to happen on mine recently.
Actually they can’t in all cases.

It’s being discussed at NHS England.
 






GT49er

Well-known member
NSC Patron
Feb 1, 2009
49,186
Gloucester
I understand we have the right see our own medical records. I have asked to see mine.




Nothing............................
 


jackanada

Well-known member
Jul 19, 2011
3,509
Brighton
The most ridiculous thing I have seen is adverts on TV to contact your GP if you feel ill.
It takes my sister in law in the UK ages just to get to speak to a doctor let alone actually meet one.
When one of the children was worryingly ill recently my missus spent entire days on the phone.
Step 1 - get through to the surgery phone system
Step 2 - get into phone queue
Step 3 - get receptionist. Ask for appointment. Impossible. Ask for telephone consultation. Ummmm, what's the problem? Oh I'll get one of the clinical team to call you back.
Step 4 - wait,
Step 5 - wait some more.
Step 6 - repeat steps 1 -5
Step 7- answer phone, explain problem. Oh I'll get the nurse practitioner to contact you. What? Are you even a nurse? Never mind. It's getting late so it might be tomorrow morning ok.
step 8 - get through night, wait more, repeat steps 1-5. No we've spoken to a member of clinical team, they said nurse practitioner would call. They did? Yes. I'm sure. At this time. Actually I'd rather speak directly to the doctor and while it may be a dream is they could actually see my child that would be quickest for all parties...
step 9 - now wait for call from nurse practitioner


I'll cut it short, eventually a mere 48 hours later an actual doctor calls. 2 minutes later we send some photos. Very soon after Dr calls again and advice and prescription issued. "it's quite advanced it's important you start the medication as soon as possible". Yes that's why we asked for a doctor two days ago.
 




Springal

Well-known member
Feb 12, 2005
24,785
GOSBTS
Unless it’s an emergency or cancer the NHS is broken. It doesn’t help that the delays to see a GP means more people going to A&E for non urgent issues. I had one afternoon in there and a lot of people I saw there were definitely in that camp.

I saw 2 separate GPs in the last few months having pretty much self diagnosed what it was (pretty simple hernia) - both disagreed. I have private healthcare through work so decided to see a hernia specialist and blagged it without a referral, turns out I was right.

Also part of that had an ultrasound which uncovered a more serious issue - operation booked and completed within 2 weeks. Couldn’t even get an ultrasound with the NHS in under 3 months and waitlist for the operation would be about a year.
 




golddene

Well-known member
Jul 28, 2012
2,019
Have to say in my opinion that health care seems to be about where you live or more likely how professional and dedicated your GP practise is. My mate who lives in the Poets corner area of Hove is 72 years of age finds it almost impossible to get a face to face appointment with his GP, he has an ongoing problem with his stomach and bowel (constant pain, passing blood etc etc, he is in a queue to see a specialist but has been told at least an 18 week wait, this is now currently 23 weeks and counting, he received a questionnaire from the hospital department asking how his condition was with three options to a tick box, 1, has your condition cleared itself, 2, is your condition manageable so no need to remain on waiting list, 3, do you still need to see the specialist ! His condition has been ongoing for at least 3 years ! He tries to do all the right things, daily exercise, doesn’t smoke or drink, eats healthily to the point of researching on line to change his diet to improve his digestive system and minimise his pain, discomfort and symptoms.

Here in Eastbourne our medical centre GP practise are brilliant, they are constantly monitoring my and my wife’s health, regular check ups, blood tests, Covid, Flu and pneumonia jabs, arranging clinics for COPD and other breathing problems to help management of conditions, regular medication reviews, etc etc, In an example I telephoned the surgery on Friday as I have a small swelling appear on my stomach area which I feared could be a Hernia, the receptionist said that one of our practise GP’s had a Saturday surgery at a local health centre, not our normal health centre but very local to our address, I made the appointment, was seen and diagnosed within five minutes of attending with an umbilical hernia, told best left alone unless or until it worsens or if severe discomfort/pain is experienced to immediately take myself off to A&E as could be a medical emergency.

Our NHS is a brilliant service, worth every penny we all have or are paying into and everyone deserves the sort of treatment we currently are receiving, it’s a shame that not all areas have the same facilities and dedication from their medical professionals as we get. It can only be workload so in effect a postcode thing as our previous Dr’s surgery in Brighton were equally caring and efficient as our one now.
 


Thunder Bolt

Silly old bat
I use it.

There are pro’s and cons, depending on how you feel as an individual.

Positives:
You can see your results quickly, including a range with confidence intervals etc.
You can see when your next appointments are

Negative:
Without medical interpretation, when you are outside a range for a set of blood results, it could be worrying.

It can also result in the ‘worried we’ll’ contacting hard pressed GP practices unnecessarily.

I would go for it, but not delve too deeply in th.e results.
I have an excellent GP’s practice and have never failed to get an appointment or telephone call.
Recently, I had a couple of routine blood tests, and noticed one of them had two of four functions outside of the ‘normal’ parameters. I rang the receptionist (in the afternoon when I knew I would get through) and she checked the doctor’s notes. It was ok and just down to age.
 


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