[Misc] It's not too late to share and donate.

[xbakerbob]

www.gofundme.com/hope-for-emily-rose

 

[spence]

Don't take this the wrong way but you have raised the figure you wanted which is great news for the little one but why continue to ask for help ?

 

[Albion my Albion]

Don't take this the wrong way but you have raised the figure you wanted which is great news for the little one but why continue to ask for help ?

Don't you want to help even more out of the goodness of your heart?

 

[darkwolf666]

Don't take this the wrong way but you have raised the figure you wanted which is great news for the little one but why continue to ask for help ?

Ooh, now that's a little harsh - I know as someone who is bringing up children with special needs that it can be draining financially as well as emotionally and physically. I am sure the target that was originally set was a modest one, which Adam is delighted to have reached, but hitting that target doesn't make the need go away, and any extra will help.

Having said all that, I walk a lot into my local town and having been confronted by the same set of chuggers, trying to get me to sign up to help deaf children, on at least 8 occasions in two days I wanted to tell them to go **** themselves, politely obviously, as they are collecting for the needy!

 

[xbakerbob]

Don't take this the wrong way but you have raised the figure you wanted which is great news for the little one but why continue to ask for help ?

No offence and certainly will not be taken in the wrong way.
It was good of you to spend the time and have a read.
It's just as much raising awareness of the horrible syndrome as it is getting donation's.
But just to give you an idea of costs a specialist wheel chair with a carry cot for Emily's little brother was nearly £3600.The eye gazing equipment that she needs to be able to communicate was over £3000.
In the past they have travelled 500 miles a month for treatment, appointment's etc.
The costs go on and on with very little help from social services etc.
My son and family will have to move house to accommodate Emily with her own downstairs bedroom and wet room.
Don't mean to preach but this is the reality of raising a disabled child that may not live into 20's.

 

[spence]

Ooh, now that's a little harsh - I know as someone who is bringing up children with special needs that it can be draining financially as well as emotionally and physically. I am sure the target that was originally set was a modest one, which Adam is delighted to have reached, but hitting that target doesn't make the need go away, and any extra will help.

Having said all that, I walk a lot into my local town and having been confronted by the same set of chuggers, trying to get me to sign up to help deaf children, on at least 8 occasions in two days I wanted to tell them to go **** themselves, politely obviously, as they are collecting for the needy!

You obviously you can't read. My post wasn't harsh at all.

No offence and certainly will not be taken in the wrong way.
It was good of you to spend the time and have a read.
It's just as much raising awareness of the horrible syndrome as it is getting donation's.
But just to give you an idea of costs a specialist wheel chair with a carry cot for Emily's little brother was nearly £3600.The eye gazing equipment that she needs to be able to communicate was over £3000.
In the past they have travelled 500 miles a month for treatment, appointment's etc.
The costs go on and on with very little help from social services etc.
My son and family will have to move house to accommodate Emily with her own downstairs bedroom and wet room.
Don't mean to preach but this is the reality of raising a disabled child that may not live into 20's.

God luck with that. To raise a disabled child.must be extremely difficult and one i couldn't do myself if i'm honest.

Don't you get help with a carers allowance ?

 

[xbakerbob]

You obviously you can't read. My post wasn't harsh at all.


God luck with that. To raise a disabled child.must be extremely difficult and one i couldn't do myself if i'm honest.

Don't you get help with a carers allowance ?

They do get help with carers allowance but just goes mainly on traverling costs.
They also take Emily's older brother to sibling groups counciling sessions.
Thank you for your thoughts.

 

[darkwolf666]

You obviously you can't read. My post wasn't harsh at all.


God luck with that. To raise a disabled child.must be extremely difficult and one i couldn't do myself if i'm honest.

Don't you get help with a carers allowance ?

I can obviously read as well as you can proof read

Maybe it's the difficulty with tone of messages, as it certainly read to me like you were having a pop at the OP - my apologies for misconstruing your intentions!