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[Help] Anyone suffering from Raynaud's Disease



darkwolf666

darkwolf666

Well-known member
Nov 8, 2015
7,842
Sittingbourne, Kent
I was diagnosed a while ago with Raynaud's disease and this cold weather is playing hell with my fingers, in particular, and also my toes to a lesser extent.

Are there any sufferers on these fine boards and if so, what do you recommend - and don't say wear gloves or bed socks!!!
 






Cotton Socks

Cotton Socks

Skint Supporter
Feb 20, 2017
2,267
Yes but only in my fingers which do turn lovely shades of blue & white!! Gloves on their own are f**king useless & almost feel like they trap the cold in. Rechargeable hand warmers seem to work well when on a dog walk but it still takes around 30 mins for my fingers to get to a normal colour & you have to keep your hands in your pockets. I was given some of those disposable hand warmers at Xmas, I put them under a new pair of thermal gloves. Still takes about 20 mins to get the colour back but means I can hold the dogs lead.
They're probably really bad for the environment but my fingers don't feel like they are going to snap off, so I don't care. Rechargeable ones are best if you don't need to use your hands. You could put the disposable pouches under socks but obviously you can't walk on them. It has sped up the process of pain, to numb, to pins & needles then to normal by using them.
 


Cotton Socks

Cotton Socks

Skint Supporter
Feb 20, 2017
2,267
Dibdab said:
The wife suffers badly with it. She uses those heat packs and sticks them in her gloves!\

Click to expand...
They're similar to the ones I was given.
 


darkwolf666

darkwolf666

Well-known member
Nov 8, 2015
7,842
Sittingbourne, Kent
Cotton Socks said:
Yes but only in my fingers which do turn lovely shades of blue & white!! Gloves on their own are f**king useless & almost feel like they trap the cold in. Rechargeable hand warmers seem to work well when on a dog walk but it still takes around 30 mins for my fingers to get to a normal colour & you have to keep your hands in your pockets. I was given some of those disposable hand warmers at Xmas, I put them under a new pair of thermal gloves. Still takes about 20 mins to get the colour back but means I can hold the dogs lead.
They're probably really bad for the environment but my fingers don't feel like they are going to snap off, so I don't care. Rechargeable ones are best if you don't need to use your hands. You could put the disposable pouches under socks but obviously you can't walk on them. It has sped up the process of pain, to numb, to pins & needles then to normal by using them.
Click to expand...
My fingers don’t really follow the traditional colour hues, instead they just hurt and feel incredibly cold. I think the hand warmers may be the best option, going forward!

My wife, bless her, offered to get me some fingerless gloves to keep my hands warm, not really understanding my problem…
 




Cotton Socks

Cotton Socks

Skint Supporter
Feb 20, 2017
2,267
darkwolf666 said:
My fingers don’t really follow the traditional colour hues, instead they just hurt and feel incredibly cold. I think the hand warmers may be the best option, going forward!

My wife, bless her, offered to get me some fingerless gloves to keep my hands warm, not really understanding my problem…
Click to expand...
If this is a new thing it may be worth getting a check with your GP, certain meds can trigger it as well.
No people don't understand it, I get it all year round, it can be 22 degrees & my hands will sometimes still be cold. I think I've just got into a habit of my hands being in my pockets. I'm currently in my centrally heated house, the tip of my nose is freezing, the hand I'm typing with is cold but I've just realised my other hand is in my jeans pocket! I was 'this' many days old when I realised I spend a lot of time with my hands in a pocket. :lolol:
 




A

alanfp

Active member
Feb 23, 2024
170
I know several women who have told me they "have Raynaud's". Until 10 minutes ago I assumed it was an actual disease, but it appears that it's the name for the "phenomenon" (NHS's term) of poor circulation that makes your fingers and toes feel cold and go white.... in which case I've had it for as long as I can remember.

So to answer your question, the solution is mittens - lower surface area to lose heat. I've not used hand-warmers but if you do, it must be better to use them in mittens rather than gloves, so that the heat gets to your fingers. I bought proper skiing mittens and they work very well.
 




dazzer6666

dazzer6666

Well-known member
NSC Patron
Mar 27, 2013
56,548
Burgess Hill
darkwolf666 said:
I was diagnosed a while ago with Raynaud's disease and this cold weather is playing hell with my fingers, in particular, and also my toes to a lesser extent.

Are there any sufferers on these fine boards and if so, what do you recommend - and don't say wear gloves or bed socks!!!
Click to expand...
I have awful issues with cold hands and feet. Electric (rechargeable) gloves and socks when outdoors are fantastic - several hours heat from each charge and enough to stave off the numbness and pain. The gloves are about the same size as motorcycle gauntlets with the (light) battery on the back of the hand above the wrist, the socks are just like wearing any other long sock, the battery goes in a small pocket to the side and temp is controlled using an app on my phone. I also carry a couple of rechargeable handwarmers (each about the size of a PC mouse) for when I can’t wear gloves.
 


kevo

kevo

Well-known member
Mar 8, 2008
9,987
Cotton Socks said:
If this is a new thing it may be worth getting a check with your GP, certain meds can trigger it as well.
Click to expand...
Agree. Can be a sign of more serious issues such as auto-immune conditions like systemic sclerosis.
 


darkwolf666

darkwolf666

Well-known member
Nov 8, 2015
7,842
Sittingbourne, Kent
Cotton Socks said:
If this is a new thing it may be worth getting a check with your GP, certain meds can trigger it as well.
No people don't understand it, I get it all year round, it can be 22 degrees & my hands will sometimes still be cold. I think I've just got into a habit of my hands being in my pockets. I'm currently in my centrally heated house, the tip of my nose is freezing, the hand I'm typing with is cold but I've just realised my other hand is in my jeans pocket! I was 'this' many days old when I realised I spend a lot of time with my hands in a pocket. :lolol:
Click to expand...
It was my GP who diagnosed it. I am waiting to see if there is any improvement in the warmer weather.

I have bought some gloves, which helps when I'm outdoors, but not sure I can wear them indoors without looking like Doctor Strangelove...!

Thanks for all the helpful replies and concern - much appreciated.
 


Red Squirrel

Red Squirrel

Well-known member
Oct 13, 2022
586
The Highlands
I have raynauds, it's caused by blockages to micro arteries in the hands and feet. I try not to wear anything that will constrict circulation. I wear two layers of gentle grip diabetes socks that don't have elastic, I also throw a blanket over my feet. Rather than gloves, I keep my hands n my pockets. A podiatrist advised not to expose my feet to direct heat or quick changes of temperature as that may cause blistering and ulcers. I moisturise my feet every day, the massaging helps the circulation. I had a heated foot pad but I don't use it any more.
 


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